Fisher
EB Jr, Sussman LK, Arfken C, Harrison D, Munro J, Sykes RK, Sylvia S, Strunk
RC.
Targeting high risk groups. Neighborhood organization for pediatric
asthma management in the Neighborhood Asthma Coalition.
Chest 1994;106(4 Suppl):248S-259S.
In response to the pattern of underutilization of medical care and “poor
day-to-day management of asthma” among African American children,
the authors of this paper describe a program designed to address the difficulties
attached to routine asthma care and management. The Neighborhood Asthma
Coalition, which serves four low-income predominantly black neighborhoods
in St. Louis, seeks to promote the following 1.) ongoing vs episodic care;
2.) reduced exposure to triggers; 3.) sensitivity to signs of attacks;
4.) attack management; and 5.) improved communication with caregivers,
professionals and teachers. The programs also targets a disturbing trend
of “inappropriate or insufficient treatment” among low-income
African American children in the St. Louis area. The authors note that
there were “ five cases of asthma-related deaths in 1987 in the
St. Louis area, all [of which] were African American and of low socioeconomic
status. Lack of prescribed corticosteroids in two decedents with known
severe asthma and markedly subtherapeutic or zero serum theophylline levels
at the time of fatal episodes in four of the five dramatize the need to
promote adequate basic care as well as co-management to those who may
be unaware of its importance or unsupported in its pursuit.”
Several reasons for the deficits in basic care are suggested. In essence,
“working with the neighborhood asthma coalition has revealed numerous,
concrete barriers to treatment which, unless pointed out by neighborhood
residents, would have gone unnoticed. For instance, pharmacies are not
open 24 hours a day in low-income neighborhoods, and residents do not
have transportation to find outlets that are. We wonder how many times
frustrated clinicians have attributed to lack of interest rather than
to lack of an open pharmacy the failure of an overwhelmed mother to fill
a prescription written in the emergency department on a weekend evening.”
In addition, the lack of awareness by physicians of the social and environmental
barriers may augment a hazardous pattern of care for the asthmatic patients.
By anecdotal accounts, this article suggests that professionals “report
the futility of scheduling routine follow-up visits and have come to accept
a pattern of urgent and emergency care as the standard.”
Furthermore, although physicians may encourage continual and timely care,
there may be institutional barriers—coupled with the personal barriers
evident from the physicians’ personal assumptions about patient
care seeking behavior—to achieving this goal. The initial program
planning of the Neighborhood Asthma Coalition, therefore, focused on increasing
access to care for asthmatic children and their caregivers. The program
developers found that “in practice,” there was a “substantial
lack of availability of routine, preventive asthma care as opposed to
episodic, acute care.” Data on the frequency of cases receiving
different numbers of routine follow-up visits over a 1-year period indicated
that 77.23% of asthmatic children received no such care and only 0.99%
had received the recommended 5 routine asthma-related visits in a one
year period. This program sought to ensure continual care by collaborating
with the ED of the St. Louis Children’s Hospital, and most importantly,
by implementing “regular meetings with physicians from the community
in order to address access to care and review the physicians’ perceptions
of problems with asthma care and barriers within target neighborhoods.”
During office visits, a doctor’s past experiences with patients
who have been unable to adhere to treatment or return for a follow-up
visit may affect the way the current patient is treated. And, as pointed
out by the authors, the physicians could be so far removed from the patients’
daily reality—burdened by the daily struggles of survival—that
the patient-physician interaction is compromised and the patient is rendered
suboptimal treatment.